Opinion: California’s Rare Disease Council Will Transform Care for People with ALS
California’s recent decision to create a Rare Disease Advisory Council is a milestone that brings new hope to people living ...
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People ‘Walk To Defeat ALS’ at the University of South Alabama
People gathered on Saturday at the University of South Alabama to walk for a good cause. The first Kelly Butler ALS Center’s ...
Steakhouse owner Al Biernat, one of Dallas’ most connected restaurateurs, has died after ALS battle
Dallas steakhouse owner Al Biernat, whose charismatic presence at his namesake restaurant attracted both the famous and the ...
Aaron Lazar Receives Grammy Nomination for Debut Album Recorded After Being Diagnosed with ALS
Aaron Lazar received his first-ever Grammy nomination on Friday, Nov. 8 for his debut album, 'Impossible Dream.' It was an ...
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Youngstown cathedral to host benefit dinner for woman battling ALS
Kara Harris has been diagnosed with ALS — a progressive disease that attacks the nervous system ... The event will also ...
Her Husband Was Diagnosed With ALS, And She Knew Cutting-Edge Treatments Would Extend His Life. Now, Her Company Helps Others Get Care.
Sandra Abrevaya and her husband Brian Wallach started Synpaticure to help patients with neurodegenerative diseases access ...
BioPharma Dive23h
How a Biogen drug set the stage for a new biotech targeting ALS
Trace Neuroscience, which launched this week with $101 million, benefited from last year’s approval of Qalsody. Its CEO spoke ...
ALS Canada announces first-of-its-kind National ALS Genetic Counsellor with funding from TD Bank Group
ALS is a neurodegenerative disease that progressively paralyzes individuals as the brain loses the ability to communicate with the muscles. People living with ALS often experience a swift decline in ...
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Trace Neuroscience Launches With $101 Million Series A Financing to Expand Genomic Medicine for Neurodegenerative Diseases
Trace Neuroscience Launches with $101 Million Series A Financing to Expand Genomic Medicine for Neurodegenerative Diseases, ...
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Third Rock-backed Trace uses $101M series A to go after same ALS target as Lilly
Almost all cases of ALS and half of frontotemporal dementia (FTD) cases are linked to dysfunction in a protein TDP-43.
Genetic Discrimination Is Coming for Us All
The familial trend, it turned out, was linked to a genetic mutation. That meant Bill might also be at risk for the disease.