Easter Sunday was wonderful. The pipe organ at our church hadn’t worked in four years, but thanks to generous donors, it was finally restored. We revealed it on Easter with a brass quintet and choir, ...

One Roctavian dose prevented bleeds and the need for replacement therapy up to five years in most men with severe hemophilia A in Phase 3 trial.

Columnist Allyx Formalejo responds to a study that found that better mental health may improve adherence to hemophilia ...

Columnist Jennifer Lynne is returning to her original diagnosis of "factor IX deficiency" to avoid the assumption that she has hemophilia A.

Levels of the YKL-40 protein in boys and men with severe hemophilia A were higher in patients with joint damage, a study ...

What words helped columnist Joe MacDonald process his emotions after he learned of his son's diagnosis? That he would live a long life.

Confident protection from hemophilia A Through medical advances, you can switch from reactive care to proactive, personalized ...

Guest writer Kevin Leurquin says that learning to administer his own infusions taught him to challenge his limitations with ...

When loneliness lasts for a long time, it can become chronic. You might even feel lonely in a crowd, and the despair can be overwhelming.

A doctoral program's cost puts it out of reach for columnist G Shellye Horowitz, who isn't giving up on seeking out a new ...

People with hemophilia who report better mental health may be more likely to adhere to prophylactic treatment, a study ...

Among the skills one acquires while living with a person with hemophilia is learning to remove blood stains, says columnist Allyx Formalejo.