Easter Sunday was wonderful. The pipe organ at our church hadn’t worked in four years, but thanks to generous donors, it was finally restored. We revealed it on Easter with a brass quintet and choir, ...

One Roctavian dose prevented bleeds and the need for replacement therapy up to five years in most men with severe hemophilia A in Phase 3 trial.

Columnist Allyx Formalejo responds to a study that found that better mental health may improve adherence to hemophilia ...

Guest writer Kevin Leurquin says that learning to administer his own infusions taught him to challenge his limitations with ...

People with hemophilia who report better mental health may be more likely to adhere to prophylactic treatment, a study ...

A doctoral program's cost puts it out of reach for columnist G Shellye Horowitz, who isn't giving up on seeking out a new ...

What words helped columnist Joe MacDonald process his emotions after he learned of his son's diagnosis? That he would live a long life.

Columnist Jennifer Lynne is returning to her original diagnosis of "factor IX deficiency" to avoid the assumption that she has hemophilia A.

Levels of the YKL-40 protein in boys and men with severe hemophilia A were higher in patients with joint damage, a study ...

When loneliness lasts for a long time, it can become chronic. You might even feel lonely in a crowd, and the despair can be overwhelming.

The global prevalence of hemophilia, that is, the number of people who have it, is estimated to be about 836,000 people, according to worldwide statistics. Hemophilia is a rare disorder that causes ...

Columnist Joe MacDonald writes about his early reluctance to share his story as a caregiver, and of the connection that occurred when he did.