Her Husband Was Diagnosed With ALS, And She Knew Cutting-Edge Treatments Would Extend His Life. Now, Her Company Helps Others Get Care.
Sandra Abrevaya and her husband Brian Wallach started Synpaticure to help patients with neurodegenerative diseases access ...
Opinion: California’s Rare Disease Council Will Transform Care for People with ALS
California’s recent decision to create a Rare Disease Advisory Council is a milestone that brings new hope to people living ...
Aaron Lazar Receives Grammy Nomination for Debut Album Recorded After Being Diagnosed with ALS
Aaron Lazar received his first-ever Grammy nomination on Friday, Nov. 8 for his debut album, 'Impossible Dream.' It was an ...
How a Biogen drug set the stage for a new biotech targeting ALS
Trace Neuroscience, which launched this week with $101 million, benefited from last year’s approval of Qalsody. Its CEO spoke ...
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Biopharmaceutical launches with goal to develop treatment for ALS
Trace Neuroscience has launched in the U.S. with over $100 million in financing and a goal to develop its UNC13A-targeted treatment for ALS.
Steakhouse owner Al Biernat, one of Dallas' most connected restaurateurs, has died after ALS battle
Dallas steakhouse owner Al Biernat, whose charismatic presence at his namesake restaurant attracted both the famous and the ...
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People ‘Walk To Defeat ALS’ at the University of South Alabama
People gathered on Saturday at the University of South Alabama to walk for a good cause. The first Kelly Butler ALS Center’s ...
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I AM ALS unveils new campaign aimed at supporting caregivers
This November, the nonprofit I AM ALS is launching a peer support program as part of its new campaign focused on supporting ...
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Third Rock-backed Trace uses $101M series A to go after same ALS target as Lilly
Almost all cases of ALS and half of frontotemporal dementia (FTD) cases are linked to dysfunction in a protein TDP-43.
ALS Canada announces first-of-its-kind National ALS Genetic Counsellor with funding from TD Bank Group
ALS is a neurodegenerative disease that progressively paralyzes individuals as the brain loses the ability to communicate with the muscles. People living with ALS often experience a swift decline in ...
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Nikki Way was at this event as a spokesperson for her mom, who unfortunately passed away on June 23rd from ALS.
Many people stopped by her stand to listen to her mom’s story and also to be educated on the signs and symptoms of knowing if ...
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People ‘Walk To Defeat ALS’ at the University of South Alabama
get people to walk and to donate. The Walk to Defeat ALS funds research, treatment, and a cure for Lou Gehrig’s Disease, otherwise known as ALS. The funds will help local families who are ...